My son Nat has autism, and one way it affects him is he can be very quiet and passive, even when he wants something very much. This played out on our drive home from Thanksgiving this week.
Nat loves his routines, and wants to know what is going to happen. We make him a two-week calendar every weekend, laying out what to expect coming up. Thanksgiving was tricky this year for a few reasons. First, it was especially late in the year. In the early weeks of November, he looked at his calendar and said, “Thursday.” We figured out that he meant, “it’s November, so there should be a special Thursday, but I don’t see it here.” I added on an extra row so he could see when Thanksgiving was going to happen.
But there were other complications. After a few rounds of planning, we ended up with two Thanksgivings: the first on Thursday with my sister, which we’ve hardly ever done, and then a second on Friday with Susan’s family, the usual cohort. We’d be staying in a hotel Thursday night.
We tried to carefully keep Nat informed about the plan and talked about it a number of times. He was great with all of it, all the way through the Friday meal. But driving home Friday night, he seemed a little bothered. We asked him, “what’s wrong?” A common answer to that is “no,” either because he’s not sure how to explain, or he’s not sure he’s allowed to question what’s happening, or some other form of passivity. It’s hard to get an answer because if you offer options (“do your feet hurt?”) he might just repeat that even if it isn’t the real problem.
I thought maybe he was concerned about what was going to be happening next, and often going over the routine helps. So we started to review the plan. I asked, “where are we sleeping tonight?” He answered “Brookline.”
“Tomorrow where will you eat breakfast?” — “Brookline.”
“Where will you eat lunch?” — “Brookline.”
“Where will you eat dinner?” — Here we expected he’d name his group home, but instead he said — “dinner.”
Aha! This was the clue we needed. Here’s another tricky thing about Thanksgiving: if you have a meal at 4pm (as we had on Thursday), that counts as dinner. But what if you have a meal at 2pm as we had on Friday? Even if it’s a large meal and you aren’t hungry, by the time it gets dark shouldn’t there be dinner? We didn’t have dinner! This was what was bothering him. We had completely skipped over part of the expected routine. And even with all our planning, we hadn’t thought to explain that Grandma’s big Friday meal was going to be both lunch and dinner.
So we asked, “Do you want to stop somewhere to have dinner?” — “Yes.” So we stopped at McDonald’s for a crispy chicken sandwich (removed from the bun, dipped in sweet & sour sauce), fries and a Sprite. Judging from the noises once we were back in the car, maybe he was stuffing himself on principle, but we were back on the routine, so everyone was happy.
It’s not easy to find out what Nat wants, so when he tells us, even indirectly, we try to give it to him. Some people might have resisted making a stop when we were already late getting home, or having a meal when no one was actually hungry. But it wasn’t difficult and didn’t take long. It was a small thing to do, but felt like a large part of parenting: listening to your children’s needs no matter how quiet, and helping to meet them even when they are different than your own.
Comments
Beautifully expressed. Applies to non parenting situations, too.
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